The Muscular Dystrophy Association of New Zealand Inc. (MDANZ) is a member-led organisation established by New Zealanders with lived experience of neuromuscular conditions.

We began in the late 1950’s as a support group for families affected by muscular dystrophy. Since then, we have broadened our scope to include many other neuromuscular conditions and have become a leading source of information and support to our community.

News

 

Rare Disorders Petition

People living with a rare disorder cannot be expected to continue to wait for better health and wellbeing. They have already waited too long.
Please sign and share the petition here calling on Te Whatu Ora | Health NZ to urgently engage with Rare Disorders NZ and develop an implementation plan for the Rare Disorders Strategy.

Update your info!

Have you moved or changed phone numbers recently? Changed your email or your GP?
In order to stay up to date with our emails & communications, please ensure we have your most up to date contact info.
Call us on 0800 800 337 or email info@mda.org.nz to check your details are correct.
Disability Support Services want your feedback on how Disability Support Services (DSS) could be best provided in the future.
As a first step, DSS have launched a survey for the disability community to share their thoughts on the future of disability support services. Further and broader community engagement and consultation will be held in early 2025.
The survey is open until Friday 22 November. Find link to survey here.