This month we are raising awareness and advocating for families by asking you all to write to your local MPs about the need for access to Spinraza (Nusinersen). Click here to download the letter.
Write to your Member of Parliament this month to help raise awareness of SMA and the importance of access to funded treatments. Click here to download a letter template (word format) to help you get started with your letter.
Visit the parliamentary website to find MP contact details. https://www.govt.nz/browse/engaging-with-government/members-of-parliament/
