Fieldwork Service

Our fieldworkers work in the community to provide personalised support and education, in the area of rare neuromuscular conditions covered by MDANZ. Personalised support may include supporting through diagnosis, walking alongside during times of grief and change, offering information and advice about conditions, facilitating service access through referrals or advocacy, or reducing isolation by linking people to others with shared experience.

Community education may include talking with teachers, health professionals or disability support staff to improve their understanding of progressive neuromuscular conditions, which enables them to provide even better services and supports for our members.

Download our fieldwork service brochure here