What We Offer
Our services are targeted toward individuals and whānau with lived experience of a neuromuscular condition covered by MDANZ.
We currently offer the following:
- Open access to a quarterly magazine
- A nationwide fieldworker service providing person-centred support at home and in the community (delivered in partnership with our regional branches)
- Free counselling for members with a condition and those close to them
- Discretionary grants to help members with a condition to access resources and opportunities not covered by government funding
- A fully supported Duke of Edinburgh’s Hillary Award programme for our young members (14-25yrs)
- Wallet alert cards with emergency information
- Retail discounts, including reduced medic alert joining fees
- A small pool of equipment, library books and DVDs for free loan to members
- Funding for local researchers – and we complete some of our own research as well
- A neuromuscular disease registry as a platform for members with a condition and families/whānau to access clinical trials and new treatments
- A nationwide peer to peer support network
- Open access to specialised information and advice about neuromuscular conditions
- Advocacy at a community or national level
- Education for health professionals and schools about neuromuscular conditions
- Funding for Pneumonia Vaccination
Our regional branches also provide community level support for members with conditions and those close to them, offering camps and social events. To find out more about branch activities, click here.
As registered charities, our national entity and regional branches are almost entirely reliant on grants funding, fundraising and donations to offer this support.