Our Research

From Arthur Young, Chairperson

In 2011, MDANZ formed a research trust to advance and fund local research for the benefit of New Zealanders with neuromuscular conditions.  The Trust (formally known as the Neuromuscular Research Foundation Trust or NRFT), is the principle sponsor of the New Zealand Neuromuscular Disease Registry and distributes funding* for projects that address MDANZ’s four  current research priorities - standards of care; habilitation and rehabilitation; New Zealand prevalence and incidence of neuromuscular conditions; and, treatments and cures

Our Trustees

 Arthur Young, Senior Partner, Chapman Tripp

Associate Professor Richard Roxburgh, Neurologist, Auckland District Health Board and School of Medicine and Centre for Brain Research, University of Auckland 

Associate Professor Graeme Hammond-Tooke, Neurologist, Southern District Health Board and School of Medicine, University of Otago

Professor Leigh Hale, Dean, School of Physiotherapy, University of Otago

Dr Alexa Kidd, Clinical Scientist, Canterbury Health Laboratories, Canterbury District Health Board

Dr Gemma Poke, Clinical Geneticist, Genetic Health Services New Zealand, Wellington

Dr Tristram Ingham, Senior Research Fellow, School of Medicine, University of Otago, Wellington

Our Year

To view a copy of the 2019 Annual Report, please click here. 

To view a summary of all grants distributed by Neuromuscular Research New Zealand please click here.

*Grants distributed by Neuromuscular Research New Zealand are made possible through the generous contributions of individual donors and the Richdale Charitable Trust.