We are a registered charity and our reporting and accounting standards meet the legal requirements set out for New Zealand charities. As a member led organisation, one of our strengths is that the majority of our governance members have lived experience of neuromuscular conditions and bring this to the leadership space.

National Council

Our organisation is governed by a National Council made up of elected MDANZ members and Branch representatives who volunteer their time to the benefit of the association. The National Council meets six times a year, and usually, three of these meetings are face to face and the others are via teleconference.

The elected councillors are responsible for setting the strategic direction of the association, appointing the Chief Executive and overseeing subcommittees. If you would like to read the current Strategic Plan, please click here.

Governing rules of MDANZ

The rules of our organisation are set out in a “Constitution”. You can read these rules by clicking here.

Getting involved

For more information on what it might mean for you to be part of a charity governance structure click here.

Also check our AGM page for details about the election process.