Events

MDANZ strives to help our members get together as often as possible through local events. These include things like coffee groups, Christmas get togethers, family meetings, kids camps, guest speakers and lots more.

Upcoming Events

July 2025

Webinars 

We are delighted to have Dr. Gina O’Grady & Miriam Rodrigues from the The Neurogenetics Research Clinic hosting two webinars for members.

Gina O’Grady is a Paediatric Neurologist at Starship Children’s Hospital & Miriam is a Genetic counsellor and the Neurogenetic Research Lead at Te Toka Tumai – Auckland City Hospital.

Session 1: The (Long) Road to Access: Understanding Drug Development, Approval, & Funding Pathways | Tuesday 22nd July 2025 – 7.00pm

Session 2: The Future of Duchenne Treatment: Emerging Therapies | Wednesday 5th August 2025 – 7.00pm

Email info@mda.org.nz for the Zoom links

 

Online Support Groups

Click on the Support Group Meeting for the Zoom Link!

Inclusion Body Myositis (IBM)Wednesday 2nd July 2025 – 11am

Charcot-Marie-Tooth Disease (CMT)Friday 4th July 2025 – 7.30pm

Myotonic Dystrophy (DM)Tuesday 8th July 2025 – 7.00pm

Facioscapulohumeral Muscular Dystrophy (FSHD)Wednesday 9th July 2025 – 7.00pm