MDANZ Media Release: Pharmac recommendation will change children's lives

02 June 2020

The membership organisation representing New Zealanders living with rare neuromuscular conditions, Muscular Dystrophy New Zealand (MDANZ), is very pleased and relieved to learn that children with the progressive muscle-wasting disease, spinal muscular atrophy (SMA), should soon have access to the life-changing treatment, nusinersen.

Experience The World From Home!

05 May 2020

MSNZ have put together a wonderful resource that shows a list of ways people can experience the world from home. All of these will help people encounter the world outside of their bubble! From free audiobooks and performances by famous New Zealand artists, to a virtual dive at the Poor Nights and access to the Banff Film Festival, people of all ages will find plenty to keep them occupied. Click here to view!

Skinny Jump

23 April 2020

Skinny has introduced an affordable broadband plan. Click here to read more about it!

Support during the Coronavirus pandemic

07 April 2020

Click here to read an email sent to all supporters of MDANZ.

COVID-19 and neuromuscular conditions

31 March 2020

Click here to read the World Muscle Society's advice