September is Charcot-Marie-Tooth Awareness Month!

21 September 2018
Anonymous

This is to draw attention to a little known but widespread condition. We estimate there are over 700 people living in New Zealand with CMT.


August is SMA Awareness month!

01 August 2018
Anonymous
August is SMA Awareness month!

This month we are raising awareness and advocating for families by asking you all to write to your local MPs about the need for access to Spinraza (Nusinersen). Click here to download the letter.


Our Dukies

11 June 2018
Anonymous
Our Dukies

Have you ever thought about taking your goals to the next level? The Duke of Edinburgh Hillary Awards could help you achieve these. Read about our young members success and how you might become one of them.


The Cost of Support

28 May 2018
Anonymous

The government saves $10.8 Billion a year due to the supports unpaid carers provide. More supports are needed. Read more about what is being done for unpaid carers.


Community Service Card

21 May 2018
Anonymous

You will have heard that the eligibility for the Community Service Card has changed. This means more people will be able to have access to home help and reduced doctor visits. Click here to find out more