Support Groups

These are groups that meet face to face. Some of them are run through MDANZ and others are run by members.



This is a free, safe and fun online community for young people aged over 10 and under 21 years living with a serious illness, chronic health condition or a disability. To join go to To speak to someone please call the Livewire support team 0800 000 680 (11am - 7pm) or email : check out this video to get an idea of what this community is all about click here

Northern Region


The Wilson Home Trust host a pre-school playgroup on the 1st Wednesday of every month. Swimming is also open for all at the Wilson Home Trust every Monday from 3pm-4pm. For information click here for the email

IBM Support Group

The IBM Gathering happens every 3 months and is primarily for people in Auckland with IBM. These gatherings are held at Rehab Plus in Point Chevallier from 12-2pm. It is a positive support group where attendees use the space as a forum to share and socialize, often over a shared lunch. Guest speakers attend from time to time. Anyone with IBM or anyone who has family/friends with IBM is welcome to attend. Notes from previous meetings are sent out to members who are unable to attend. For more information on this group, please contact fieldworker Rachel Woodworth on [email protected].

Canterbury Region Support Groups


Open invite to MDANZ members to join the Christchurch CMT support group who meet in the Northland Mall once a month. Members with other conditions are also welcome. Contact Paul Arthur on 03 354 3943.

Myotonic Dystrophy

Contact Paul Graham the Canterbury Fieldworker if you are interested in meeting once a month. Transport may be provided if this is a barrier to attending 0800 463 22 or 021 126 1209.

Timaru (South Island group)

This group meets 3 or 4 times a year for something to eat and a chat. Contact Jackie Freeman.