Our Members - Their Stories
MDANZ members share their personal stories of living with a Muscular Dystrophy condition.
Rare disease teaches Louise to be kinder to herself and others
From a GP who said it was all in her head, to facing her fears, Louise Davy is determined not to let the rare disease she has limit her. She shares her story with Melanie Louden ahead of Rare Disease Day on February 28, 2021.
Rolling with the punches and dancing to her own trumpet
When Freda Evans was diagnosed with Pompe disease more than 30 years ago she decided then and there that the condition would not rule her life. Anything people said she couldn’t do, she has done – including travelling the world alone.
The sky’s the limit for Dylan
Dylan Schneider explains how the Duke of Edinburgh’s Hillary Award is opening up new, and impressive, opportunities for him.
Flynn’s wheels bring freedom and independence
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A “spectacular recumbent” bike is seeing 17-year-old Flynn Mitchell get back into the outdoors again, which is having a positive impact on his mental well-being and… is leaving the rest of his family in his dust.
The road to recovery - Michelle's road trip
Dr Michelle Smith didn't let Covid-19 get in the way of her holiday plans. Michelle and her husband Blair switched the Mediterranean for the South Island and learnt that there are plenty of accessible options open to travellers in New Zealand who are willing to ask the right questions.