Our Members - Their Stories

MDANZ members share their personal stories of living with a Muscular Dystrophy condition. 

Rare disease teaches Louise to be kinder to herself and others

09 February 2021
Melanie Louden
Rare disease teaches Louise to be kinder to herself and others

From a GP who said it was all in her head, to facing her fears, Louise Davy is determined not to let the rare disease she has limit her. She shares her story with Melanie Louden ahead of Rare Disease Day on February 28, 2021.


Rolling with the punches and dancing to her own trumpet

12 January 2021
Melanie Louden
Rolling with the punches and dancing to her own trumpet

When Freda Evans was diagnosed with Pompe disease more than 30 years ago she decided then and there that the condition would not rule her life. Anything people said she couldn’t do, she has done – including travelling the world alone.


The sky’s the limit for Dylan

08 January 2021
Melanie Louden
The sky’s the limit for Dylan

Dylan Schneider explains how the Duke of Edinburgh’s Hillary Award is opening up new, and impressive, opportunities for him.


Flynn’s wheels bring freedom and independence

07 January 2021
Melanie Louden
Flynn’s wheels bring freedom and independence

A “spectacular recumbent” bike is seeing 17-year-old Flynn Mitchell get back into the outdoors again, which is having a positive impact on his mental well-being and… is leaving the rest of his family in his dust.


The road to recovery - Michelle's road trip

06 January 2021
Melanie Louden
The road to recovery - Michelle's road trip

Dr Michelle Smith didn't let Covid-19 get in the way of her holiday plans. Michelle and her husband Blair switched the Mediterranean for the South Island and learnt that there are plenty of accessible options open to travellers in New Zealand who are willing to ask the right questions.