Our Members - Their Stories

MDANZ members share their personal stories of living with a Muscular Dystrophy condition. 

To Cyprus (and MG) with love

26 March 2021
Melanie Louden
To Cyprus (and MG) with love

When MDANZ came to the aid of mum Libby Carmichael Venning, she was so grateful she decided to run a marathon – giving her one of the best days of her life.


A new circle of friends and a boost in confidence

25 March 2021
Anonymous
A new circle of friends and a boost in confidence

From taking on a leadership role, to spending more time with her mobility dog, Camille Peterson is taking full advantage of the Duke of Edinburgh’s Hillary Award.


Boxing away perceptions and challenges

18 March 2021
Melanie Louden
Boxing away perceptions and challenges

Olivia Shivas says trying something new can be scary and exciting at the same time, and there are often additional levels of nerves when you have a disability. But, she says, you should give it a go anyway.


Many more adventures to be had

18 March 2021
Melanie Louden
Many more adventures to be had

A “zombie-ish” moment in the lead up to a major solo art exhibition led to Judy Smith’s ocular myasthenia gravis diagnosis. She writes about living with the condition and her love of life.


"Don’t ever give up" - Lara Elliott

19 February 2021
Melanie Louden
"Don’t ever give up" - Lara Elliott

Having a rare disease hasn’t held Lara Elliott back from making the most of her life and fulfilling her dream to become a mother. She shares her story with Melanie Louden ahead of Rare Disease Day on February 28, 2021.