Our Members - Their Stories

MDANZ members share their personal stories of living with a Muscular Dystrophy condition. 

Eli Barnes is ready to roll for our annual appeal

05 August 2022
Anonymous
Eli Barnes is ready to roll for our annual appeal

We are continuing with our Roll1kforMDA challenge again this year for our national annual appeal. It’s wheelie fun, interactive, and even better – anyone and everyone can take part. MDANZ Northern Region member Eli Barnes is the face of Roll 1k for MDA. His parents, Jess Barnes (mum) and Grayson Barnes (dad) are sharing their story to help raise awareness and funds.


My identity journey

31 March 2022
Anonymous
My identity journey

Small and slow changes has helped Noah find their place in the world.


Yes, you can: Conquering CMD

13 January 2022
Anonymous
Yes, you can: Conquering CMD

Rachel Hore is not one to give up. After being made redundant from her long-time job, she persevered until another opportunity finally arose. As she writes, she just didn’t like the alternative.


Life-changing throat surgery a turning point

14 November 2021
Anonymous
Life-changing throat surgery a turning point

Eating difficulties, combined with mobility issues, were having a major impact. A diet of soft pureed food has been replaced with an almost normal diet, writes MDANZ Canterbury member Mary Fargher.


Neil Singh is ready to roll for our annual appeal

09 August 2021
Melanie Louden
Neil Singh is ready to roll for our annual appeal

MDANZ Northern Region member Neil Singh is the face of our annual appeal - Roll 1k for MDA. His parents are sharing their story to help raise awareness and funds.