Our Members - Their Stories
MDANZ members share their personal stories of living with a Muscular Dystrophy condition.
Eli Barnes is ready to roll for our annual appeal
We are continuing with our Roll1kforMDA challenge again this year for our national annual appeal. It’s wheelie fun, interactive, and even better – anyone and everyone can take part. MDANZ Northern Region member Eli Barnes is the face of Roll 1k for MDA. His parents, Jess Barnes (mum) and Grayson Barnes (dad) are sharing their story to help raise awareness and funds.
My identity journey
Small and slow changes has helped Noah find their place in the world.
Yes, you can: Conquering CMD
Rachel Hore is not one to give up. After being made redundant from her long-time job, she persevered until another opportunity finally arose. As she writes, she just didn’t like the alternative.
Life-changing throat surgery a turning point
Eating difficulties, combined with mobility issues, were having a major impact. A diet of soft pureed food has been replaced with an almost normal diet, writes MDANZ Canterbury member Mary Fargher.
Neil Singh is ready to roll for our annual appeal
MDANZ Northern Region member Neil Singh is the face of our annual appeal - Roll 1k for MDA. His parents are sharing their story to help raise awareness and funds.