Our Members - Their Stories

Doing his own research and being his own advocate led to Nathan Francis’ CMT diagnosis. He writes about living with the rapid progressing condition and how he copes.

We are continuing with our Roll1kforMDA challenge again this year for our national annual appeal. It’s wheelie fun, interactive, and even better – anyone and everyone can take part. MDANZ Northern Region member Eli Barnes is the face of Roll 1k for MDA. His parents, Jess Barnes (mum) and Grayson Barnes (dad) are sharing their story to help raise awareness and funds.

Small and slow changes has helped Noah find their place in the world.

Rachel Hore is not one to give up. After being made redundant from her long-time job, she persevered until another opportunity finally arose. As she writes, she just didn’t like the alternative.

Eating difficulties, combined with mobility issues, were having a major impact. A diet of soft pureed food has been replaced with an almost normal diet, writes MDANZ Canterbury member Mary Fargher.