Our logo is a person shown in the form of DNA. This double helix represents the genetic component to many of our conditions and reflects our commitment to families and the acknowledgement of whakapapa or family histories, which are woven through the stories of our members. Our unique governance structure ensures leadership of the organisation by individuals or family members with lived experience of a condition.
We have three regional branches – Northern, Central, and the South Island – that are supported by the national office based in Auckland. MDANZ supports individuals, families and whānau by providing specialist information, practical resources, personalised support services, social networks, campaigns for public awareness and advocacy. And through our research trust, we work to improve care standards and facilitate access to potential treatments for neuromuscular conditions.