The Muscular Dystrophy Association of New Zealand Inc. (MDANZ) is a member-led organisation established by New Zealanders with lived experience of neuromuscular conditions.

We began in the late 1950’s as a support group for families affected by muscular dystrophy. Since then, we have broadened our scope to include many other neuromuscular conditions and have become a leading source of information and support to our community. 



National AGM Outcome

May 2023

Rare Disorders

Parent Guide

The 2023 MDANZ Annual General Meeting was held on Friday 28th April via Zoom. Members and staff were among those who attended. Click below for more info. 

Rare Disorders have just released a guide for parents and caregivers of children diagnosed with a rare disorder, titled