The Muscular Dystrophy Association of New Zealand Inc. (MDANZ) is a member-led organisation established by New Zealanders with lived experience of neuromuscular conditions.

We began in the late 1950’s as a support group for families affected by muscular dystrophy. Since then, we have broadened our scope to include many other neuromuscular conditions and have become a leading source of information and support to our community. 

NEWS

Branch AGM Dates February 2023	Rare Disorders Parent Guide	Rare Diseases Month February 2023
Central Region Branch -Sunday 2ndApril @ 3.00pm via Zoom Northern Branch - Saturday 22nd April @ 2.00pm via Zoom South Island Branch - Friday 21st April @ 7.00pm via Zoom   Zoom links will be sent by the Branch closer to the date.	Rare Disorders have just released a guide for parents and caregivers of children diagnosed with a rare disorder, titled Raising a child with a rare disorder: A guide for parents and caregivers living in Aotearoa New Zealand.	February is Rare Disorders month which means it's time to 'Glow Up and Show Up for Rare!'   This month is a chance for rare disorder communities and Aotearoa to use our collective voices to raise meaningful awareness. Find out ways you can get involved!