Noticeboard

September is Charcot-Marie-Tooth Awareness Month!

21/09/2018

This is to draw attention to a little known but widespread condition. We estimate there are over 700 people living in New Zealand with CMT.

August is SMA Awareness month!

1/08/2018

This month we are raising awareness and advocating for families by asking you all to write to your local MPs about the need for access to Spinraza (Nusinersen). Click here to download the letter.

Our Dukies

11/06/2018

Have you ever thought about taking your goals to the next level? The Duke of Edinburgh Hillary Awards could help you achieve these. Read about our young members success and how you might become one of them.
  The Latest edition of In Touch is out. Click Here