The Muscular Dystrophy Association of New Zealand Inc. (MDANZ) is a member-led organisation established by New Zealanders with lived experience of neuromuscular conditions.

We began in the late 1950’s as a support group for families affected by muscular dystrophy. Since then, we have broadened our scope to include many other neuromuscular conditions and have become a leading source of information and support to our community.


MDANZ’s new ‘Speedy’ Ambassador!

August 2023

We are so excited to announce MDANZ’s new ‘Speedy’ Ambassador, Professional Race Driver Callum Hedge.

Click here for the full press release!

Central Branch Job Vacancies

August 2023

We’re hiring! Are you after a new and exciting challenge and ready to make a difference with our community of members with neuromuscular conditions?

Check out the roles we have available at our Central Region branch here.

Rare Disorders
Parent Guide

Rare Disorders have just released a guide for parents and caregivers of children diagnosed with a rare disorder, titled

Raising a child with a rare disorder:

A guide for parents and caregivers living in Aotearoa New Zealand.