Branch AGM DatesFebruary 2023 |
Rare DisordersParent Guide |
Rare Diseases MonthFebruary 2023 |
Central Region Branch -Sunday 2ndApril @ 3.00pm via Zoom Northern Branch - Saturday 22nd April @ 2.00pm via Zoom South Island Branch - Friday 21st April @ 7.00pm via Zoom
Zoom links will be sent by the Branch closer to the date. |
Rare Disorders have just released a guide for parents and caregivers of children diagnosed with a rare disorder, titled Raising a child with a rare disorder: A guide for parents and caregivers living in Aotearoa New Zealand.
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February is Rare Disorders month which means it's time to
'Glow Up and Show Up for Rare!'
This month is a chance for rare disorder communities
and Aotearoa to use our collective voices to raise meaningful awareness. Find out ways you can get involved!
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