The Muscular Dystrophy Association of New Zealand Inc. (MDANZ) is a member-led organisation established by New Zealanders with lived experience of neuromuscular conditions.
We began in the late 1950’s as a support group for families affected by muscular dystrophy. Since then, we have broadened our scope to include many other neuromuscular conditions and have become a leading source of information and support to our community.
Condition Profile
Metabolic Myopathies: They are rare, highly variable in how they present, and often misdiagnosed early in the disease course - but few conditions rival the interest that metabolic myopathies elicit, writes Shanthi Ameratunga.
Member Profile
When Freda Evans was diagnosed with Pompe disease more than 30 years ago she decided then and there that the condition would not rule her life. Anything people said she couldn’t do, she has done – including travelling the world alone.
Noticeboard
Rolling with the punches and dancing to her own trumpet
12/01/2021When Freda Evans was diagnosed with Pompe disease more than 30 years ago she decided then and there that the condition would not rule her life. Anything people said she couldn’t do, she has done – including travelling the world alone.
The sky’s the limit for Dylan
8/01/2021Dylan Schneider explains how the Duke of Edinburgh’s Hillary Award is opening up new, and impressive, opportunities for him.
Flynn’s wheels bring freedom and independence
7/01/2021A “spectacular recumbent” bike is seeing 17-year-old Flynn Mitchell get back into the outdoors again, which is having a positive impact on his mental well-being and… is leaving the rest of his family in his dust.
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