The Muscular Dystrophy Association of New Zealand Inc. (MDANZ) is a member-led organisation established by New Zealanders with lived experience of neuromuscular conditions.

We began in the late 1950’s as a support group for families affected by muscular dystrophy. Since then, we have broadened our scope to include many other neuromuscular conditions and have become a leading source of information and support to our community. 



Branch AGM Dates

February 2023

Rare Disorders

Parent Guide

Rare Diseases Month

February 2023

 Central Region Branch -Sunday 2ndApril @ 3.00pm via Zoom

Northern Branch -

Saturday 22nd April @ 2.00pm via Zoom

South Island Branch -

Friday 21st April @ 7.00pm via Zoom


Zoom links will be sent by the Branch closer to the date.


Rare Disorders have just released a guide for

parents and caregivers of children diagnosed with a rare disorder, titled Raising a child with a rare disorder:

A guide for parents and caregivers living in Aotearoa New Zealand.



February is Rare Disorders month which means it's time to
'Glow Up and Show Up for Rare!'
This month is a chance for rare disorder communities
and Aotearoa to use our collective voices to raise meaningful awareness. Find out ways you can get involved!