admin, Author at Muscular Dystrophy New Zealand

Donate to make our CE Jump!

admin — Sun, 10 Sep 2023 23:22:58 +0000

We are wanting to publish a book containing individuals stories to be a resource and awareness tool. In order to raise funds we have challenged our CE to jump of the Sky Tower! Let’s make it happen.

The MDA NZ Chief Executive Ronelle Baker has been challenged to jump off the Sky Tower. She has agreed to take up the challenge if we can raise $5000 in 40 days!!! Every dollar raised will go towards publishing our book of member stories, which will be an inspirational resource for the whole community. Please visit our give a little page and donate today.

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Winter wellness

admin — Sun, 10 Sep 2023 23:21:35 +0000

Avoiding colds, flu and lung infections can be hard during winter. That is why we have put together 9 steps to wellness. One of these steps is supporting our members to access pneumococcal vaccinations. Read on to find out more…

Here are some tips to beat the chill and fight the blues click here

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Ways to cast your vote

admin — Sun, 10 Sep 2023 23:19:44 +0000

Did you know that you could phone vote? Or that you could have someone mark your paper for you? If you didn’t, then read on as we have all your options with contact details in one place. Enjoy! And don’t forget to make your voice heard.

As our newspapers and television are filled with leaders resigning and new ones taking charge, it is easy to forget that it will soon be time to vote for those that we believe best represent us. While that decision is hard enough, finding out information about how to vote when you have access needs appears at times to be even harder. So to make things easy we have put together this blog which gives you all the options on how you might cast your vote during this election. Please note that you are able to enroll to vote right up until the 23rd September. Click here to read the blog

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Reach for the Stars

admin — Sun, 10 Sep 2023 23:17:59 +0000

We are launching our Freedom Campaign with a fun family event at the Auckland Stardome. Join us for an all ages show and the adoption of a Freedom star. Refreshments from 5pm, show at 6pm. Special discounted rates. Contact us for tickets on 0800 800 337 or email info@mda.org.nz

Book now by phoning us on 0800 800 337 or email info@mda.org.nz or you can book using Eventbrite (please note fees apply when booking through Eventbrite).

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Cocktail fundraising event

admin — Sun, 10 Sep 2023 23:16:11 +0000

We are holding a cocktail party and charity auction as part of our Freedom Campaign this September. All proceeds from the auction will go towards the Duke of Edinburgh Programme. There are amazing items on offer, including a Dan Carter signed All Blacks jersey, fun adventure packages, clothing and jewellery. Contact us for tickets 0800 800 337 or book through Eventbrite (please note booking fees apply)

Join us for a fabulous evening on the waterfront this September. All proceeds from our charity auction will go towards MDANZ Duke of Edinburgh Programme. There are amazing items on offer including a Dan Carter signed All Blacks jersey, fun adventure packages, clothing and jewellery.

Book now by phoning us on 0800 800 337 or email info@mda.org.nz or you can book through Eventbrite (please note fees apply when booking through Eventbrite). Tickets $75 per person (includes drinks and canapes).

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SMA Reference Group needs YOU

admin — Sun, 10 Sep 2023 23:14:14 +0000

MDANZ is looking for 8 people with SMA or experience as a parent of a child with SMA to become part of an advisory group working with MDANZ on projects that will benefit our SMA community. As we need a mixed group from throughout NZ, a selection process may apply. Please contact Miriam Hanna if you are interested by calling 0800 800 337 or email – it would be good to hear about your experience with SMA and the skills you could bring to the group.

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Accessible Holidays around NZ!

admin — Sun, 10 Sep 2023 23:12:32 +0000

Make the most of the warmer months with these ideas for an accessible Kiwi holiday.

For ideas on where to go on holiday click here

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International Day for Person with disabilities

admin — Sun, 10 Sep 2023 23:10:57 +0000

On the 3rd December we celebrated International Day for Persons with disabilities by holding a games day in Hamilton for our members. Thank you to all that attended.

Hamilton Gardens provided the perfect backdrop for our celebration. The annual observance of the International Day of Persons with Disabilities was proclaimed by the United Nations General Assembly resolution 47/3 in 1992. It aims to promote the rights and well-being of persons with disabilities in all spheres of society and development, and to increase awareness of disability issues in every aspect of political, social, economic and cultural life.

This years theme was “Transformation towards sustainable and resilient society for all.”

In hosting an event for our younger members we wanted to celebrate the next generation that will continue to build on our success. There were shrieks of laughter as the joy of an automatic card shuffler was discovered. The MDANZ balloons also got a workout as they were chased by wheels and feet across the room. It also gave parents the opportunity to spend time with our CE Ronelle Baker who was in attendance with her family.

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Fieldworker service

admin — Sun, 10 Sep 2023 23:09:49 +0000

MDANZ Fieldworker service is offered free of charge to MDANZ members and is funded through donations and grants. Our fieldworkers work in the community providing personalised support and education for members with lived experience of a neuromuscular condition. Find out what they may do on any given day. This article gives you a glimpse into our fieldworkers working days.

If you have ever wondered about our fieldworker service, here is an article which highlights the day in the life of a fieldworker. Click here

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Tips for reducing stress at Christmas

admin — Sun, 10 Sep 2023 23:07:53 +0000

While Christmas should be about making memories, it can also be a time of stress and anxiety. Here are some tips on eliminating some of the pressures that this season can bring.

Click here to read more

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