Resources for neuromuscular conditions

We want information about neuromuscular conditions to be easy to find, robust and reliable so that our members get a better experience with their healthcare professionals.  We are growing our collection of Standards of Care and Management Guidelines for the rare conditions that we support because by their very nature these conditions are unfamilar to many.  Select from the A-Z menu of neuromuscular conditions, to view condition information and care guidelines or recommendations.

MDANZ is a member of the  Australiasian Neuromuscular Network (ANN) fostering communities of practice and the advancement of research for the benefit of our members.  Allied health and nursing professionals may benefit from joining the AHNA Alliance, a sub-group supported by the ANN. You can find out more about ANN or AHNA at the following website: http://www.ann.org.au/

Health professionals guide to working with people with neuromuscular conditions

This resource published by MDANZ is currently under review and is no longer available.  A revised resource is expected early next year. 

Books and DVDs for loan

 

MDANZ has a range of books and DVDs for free loan from the National Office in Auckland.  Contact us on 0800 800 337 or by email [email protected] to request a list.

Other libraries available to borrow from free-of-charge are listed below  (please note that sometimes you may be required to pay for return postage)

CCS Disability Library:

http://ccsdisabilityaction.softlinkhosting.co.nz/liberty/libraryHome.do

The Hopeworks Foundation Browsery:

Website: http://116.90.132.34/~hopeworks/thebrowsery/

Contact: [email protected]