Limb Girdle Muscular Dystrophy (LGMD)

What is Limb Girdle Muscular Dystrophy?

Limb Girdle Muscular Dystrophy (LGMD) is a group of inherited disorders that affect the voluntary muscles of the hip and shoulder areas - the pelvic and shoulder girldes, also known as the limb girdles. These muscles weaken and waste away (atrophy), and as a progressive disorder, it may involve other muscles over a period of time. For more information about Limb Girdle Muscular Dystrophy click here.

The front view showing which muscles experience weakness with Limb Girdle Muscular Dystrophy Image sourced from http://mda.org/disease/limb-girdle-muscular-dystrophy/overview

Recently, the naming system (nomenclature) of limb girdle muscular dystrophies has changed click here to find out why and what the new name for your type of LGMD is.

LGMD Community

There are a number of different Facebook groups (some are closed groups) for these conditions, either generic or sub type specific, and they are a good forum to learn from others’ experiences or discuss issues.

Limb Girdle Muscular Dystrophy Beyond Labels and Limitations.
Limb Girdle Muscular Dystrophy Awareness Day: The LGMD Awareness Day is the 30th September each year.
C3 Community for R1/2A
National Limb Girdle Muscular Dystrophy
Women Living with MD

Q&A: Here is where we answer some of our members questions. If you have any questions please email them to [email protected] and we will endeavour to answer them.