Leukodystrophies

The leukodystrophies are a group of rare genetic disorders that affect the central nervous system by disrupting the growth or maintenance of the myelin sheath that insulates nerve cells. These disorders are progressive, meaning that they tend to get worse throughout the life of the patient. These include:

Adrenoleucodystrophy

Adrenomyeloneuropathy

Metachromatic Leukodystrophy

To find out more please visit The United Leukodystrophy Foundation - USA - http://ulf.org/

Click here to be taken to their factsheet on leukodystrophies. 

For Health Care Professionals, Find a link to the following Clinical Paper titled "X-linked adrenoleukodystrophy: Clinical, metabolic, genetic and pathophysiological aspects" here.

Q&A: Here is where we answer some of our members questions. If you have any questions please email them to [email protected] and we will endeavour to answer them.