This is to draw attention to a little known but widespread condition. We estimate there are over 700 people living in New Zealand with CMT.

This month we are raising awareness and advocating for families by asking you all to write to your local MPs about the need for access to Spinraza (Nusinersen). Click here to download the letter.

Have you ever thought about taking your goals to the next level? The Duke of Edinburgh Hillary Awards could help you achieve these. Read about our young members success and how you might become one of them.

The government saves $10.8 Billion a year due to the supports unpaid carers provide. More supports are needed. Read more about what is being done for unpaid carers.

You will have heard that the eligibility for the Community Service Card has changed. This means more people will be able to have access to home help and reduced doctor visits. Click here to find out more