Our Members - Their Stories

MDANZ members share their personal stories of living with a Muscular Dystrophy condition. 

Rolling with the punches and dancing to her own trumpet

12 January 2021
Melanie Louden
Rolling with the punches and dancing to her own trumpet

When Freda Evans was diagnosed with Pompe disease more than 30 years ago she decided then and there that the condition would not rule her life. Anything people said she couldn’t do, she has done – including travelling the world alone.