Our Members - Their Stories

We are continuing with our Roll1kforMDA challenge again this year for our national annual appeal. It’s wheelie fun, interactive, and even better – anyone and everyone can take part. MDANZ Northern Region member Eli Barnes is the face of Roll 1k for MDA. His parents, Jess Barnes (mum) and Grayson Barnes (dad) are sharing their story to help raise awareness and funds.

Eating difficulties, combined with mobility issues, were having a major impact. A diet of soft pureed food has been replaced with an almost normal diet, writes MDANZ Canterbury member Mary Fargher.

MDANZ Northern Region member Neil Singh is the face of our annual appeal - Roll 1k for MDA. His parents are sharing their story to help raise awareness and funds.

Something as simple as a concrete path has helped ensure Daniel Bertinshaw can still be part of treasured family gatherings.

FSHD isn’t slowing Alisha Mill down. After a successful 2020 year playing boccia she has high hopes for what this year will hold.