Our Members - Their Stories

MDANZ members share their personal stories of living with a Muscular Dystrophy condition. 

Life-changing throat surgery a turning point

14 November 2021
Anonymous
Life-changing throat surgery a turning point

Eating difficulties, combined with mobility issues, were having a major impact. A diet of soft pureed food has been replaced with an almost normal diet, writes MDANZ Canterbury member Mary Fargher.


Neil Singh is ready to roll for our annual appeal

09 August 2021
Melanie Louden
Neil Singh is ready to roll for our annual appeal

MDANZ Northern Region member Neil Singh is the face of our annual appeal - Roll 1k for MDA. His parents are sharing their story to help raise awareness and funds.


Rolling through 2021

17 June 2021
Melanie Louden
Rolling through 2021

FSHD isn’t slowing Alisha Mill down. After a successful 2020 year playing boccia she has high hopes for what this year will hold.


To Cyprus (and MG) with love

26 March 2021
Melanie Louden
To Cyprus (and MG) with love

When MDANZ came to the aid of mum Libby Carmichael Venning, she was so grateful she decided to run a marathon – giving her one of the best days of her life.