Our Members - Their Stories

MDANZ members share their personal stories of living with a Muscular Dystrophy condition. 

Yes, you can: Conquering CMD

13 January 2022
Anonymous
Yes, you can: Conquering CMD

Rachel Hore is not one to give up. After being made redundant from her long-time job, she persevered until another opportunity finally arose. As she writes, she just didn’t like the alternative.


Life-changing throat surgery a turning point

14 November 2021
Anonymous
Life-changing throat surgery a turning point

Eating difficulties, combined with mobility issues, were having a major impact. A diet of soft pureed food has been replaced with an almost normal diet, writes MDANZ Canterbury member Mary Fargher.


Neil Singh is ready to roll for our annual appeal

09 August 2021
Melanie Louden
Neil Singh is ready to roll for our annual appeal

MDANZ Northern Region member Neil Singh is the face of our annual appeal - Roll 1k for MDA. His parents are sharing their story to help raise awareness and funds.


I see you…

26 March 2021
Anonymous
I see you…

Corinne King, mum to Ethan, 9, and Ollie, 7, who both have Duchenne muscular dystrophy, reflects on a very special weekend away at the MD Northern Branch family camp and the generosity and love she saw being shared.


To Cyprus (and MG) with love

26 March 2021
Melanie Louden
To Cyprus (and MG) with love

When MDANZ came to the aid of mum Libby Carmichael Venning, she was so grateful she decided to run a marathon – giving her one of the best days of her life.