Our Members - Their Stories

MDANZ members share their personal stories of living with a Muscular Dystrophy condition. 

Neil Singh is ready to roll for our annual appeal

09 August 2021
Melanie Louden
Neil Singh is ready to roll for our annual appeal

MDANZ Northern Region member Neil Singh is the face of our annual appeal - Roll 1k for MDA. His parents are sharing their story to help raise awareness and funds.


I see you…

26 March 2021
Anonymous
I see you…

Corinne King, mum to Ethan, 9, and Ollie, 7, who both have Duchenne muscular dystrophy, reflects on a very special weekend away at the MD Northern Branch family camp and the generosity and love she saw being shared.


To Cyprus (and MG) with love

26 March 2021
Melanie Louden
To Cyprus (and MG) with love

When MDANZ came to the aid of mum Libby Carmichael Venning, she was so grateful she decided to run a marathon – giving her one of the best days of her life.


A new circle of friends and a boost in confidence

25 March 2021
Anonymous
A new circle of friends and a boost in confidence

From taking on a leadership role, to spending more time with her mobility dog, Camille Peterson is taking full advantage of the Duke of Edinburgh’s Hillary Award.


Many more adventures to be had

18 March 2021
Melanie Louden
Many more adventures to be had

A “zombie-ish” moment in the lead up to a major solo art exhibition led to Judy Smith’s ocular myasthenia gravis diagnosis. She writes about living with the condition and her love of life.