Advocacy and Referral


If you're having a problem with a health or disability service your MDA Fieldworker can support and assist you to work through the problem.

When you use any health or disability service (including the MDA Fieldworker or information service) you have the protection of the code of health and disability services consumer rights, in the case of when it is another service that the MDA isn't providing your MDA Fieldworker can help you through the process. 

The Code of Health and Disability Services Consumers Rights:

  1. Right to be treated with respect
  2. Right to freedom from discrimination, coercion, harassment and exploitation
  3. Right to dignity and independence
  4. Right to services of an appropriate standard
  5. Right to effective communication
  6. Right to be fully informed
  7. Right to make an informed choice and give informed consent
  8. Right to support
  9. Rights in respect of teaching or research
  10. Right to complain

If you think your rights have been breached you can also contact your local advocate or the Health and Disability Commissioner toll free on 0800 11 22 33 or email them at

A copy of the 'Code of Health and Disability Consumer Rights can be found at

Referral Service

Your MDA Fieldworker can refer you and your family to other services to help get what you need or they can advise you on a suitable referral pathway. For example to access some specialist health services a referral from your General Practitioner is required. Services that you're MDA Fieldworker can directly refer you to include, clinical genetic services, needs assessment and service coordination agencies and counselling.