Support & Services

The MDA provides a variety of free specialist services to help support our members. These services are provided at different levels, some through our branches and some through our National Office.

Here is some further detail but please contact your branch or the National Office for more detailed information and advice on how we can help you.

CORE SERVICES:

The Muscular Dystrophy Association of New Zealand is the leading provider of support for people with these conditions (including MD and other neuromuscular conditions) and provides the following free core services:

  • Supports the provision of a national Fieldwork service
  • Provides specialist information and advice
  • Campaigns to raise awareness and bring about change

MORE VITAL WORK:

We rely almost entirely on voluntary donations. The funds raised help the MDA to continue our vital work:

  • Practical workshops
  • Nationwide support network to connect members
  • Confidential nationwide counselling service
  • Promotion and education of muscular dystrophy and other neuromuscular conditions
  • Advocacy (lobbying) on behalf of members to increase the services being offered by local DHBs, access to public buildings and lifesaving equipment
  • Working with health, disability and social welfare organisations
  • Specialist condition and condition related information and resources
  • Informative website full of detailed information and resources
  • Individual assistance with funding applications
  • Working with schools, medical professionals, carers and other interested parties to better support individuals with neuromuscular conditions
  • Publication of a quarterly members magazine "In Touch"
  • Library service
  • Funding research projects which benefit our members through the Neuromuscular Research Foundation Trust
  • Neuromuscular Disease Registry, which enables kiwis with neuromuscular conditions to participate in international clinical trials for new therapies and treatments
  • MDA Conference, which brings together leaders in neuromuscular conditions and others of interest to our members to share insight and learnings

View as a pdf

 Above list is current as at 2.09.2014