MDA has a range of books and dvds available on loan. Simply click a book you like to send us an email or phone us.

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Latest book review

Myotonic Dystrophy - The Facts by Peter Harper

This short, easy-to-read book by one of the world's leading experts in Myotonic Dystrophy is essential reading for everyone affected by or interested in Myotonic Dystrophy.

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Brenton's Story - Edited by John Fitzgerald

An autobiographical account of one young man's struggle with muscular dystrophy

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Communicating with Dying People and their Relatives by Jean Lugton

Exploring the emotional problems patients, relatives, close friends and professionals experience and the support they need when someone is dying, this book focuses on the skills required to support the patient and to provide pre- and post-bereavement counselling for relatives.

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Job Hunting Hints

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Legacy of Occupation

Stories of Occupational Therapy in New Zealand 1942-1979

Book reviewed by Linda H. Wilson

This delightful book and the accompanying CD, will be of particular interest to those who were or knew students at the New Zealand occupational therapy training school (later known as the New Zealand School of Occupational Therapy), historians or history enthusiasts curious about health services and health professions, and occupational therapists with an interest in changes within the profession, and changes in womens' lives.

 

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Lessons of Loss - A guide to coping

Robert A. Neimeyer

Robert A. Neimeyer, Ph.D., holds a Dunavant University Professorship in the Department of Psychology, University of Memphis, where he also maintains an active clinical practice. Since completing his doctoral training at the University of Nebraska in 1982, he has conducted extensive research on the topics of death, grief, loss, and suicide intervention. - See more at: http://www.taosinstitute.net/robert-a-neimeyer-phd#sthash.jxyTky50.dpuf

 Loss can have many meanings from loss of family or friends, loss of something valued, a loss of an ability. This book discusses those losses, how we react to them and how we can adapt to them. It explores both the common themes and challenges that characterise the human experience of loss.

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Life on Wheels - For the Active Wheelchair user

This book is for people who want to take charge of their own life experience while using a wheelchair. Author Gary Karp, ergonomics consultant and long-time chair user, describes:

  • Medical issues (paralysis, circulation, rehab experience, choosing the optimal wheelchair, scientific progress toward a cure)

  • Day-to-day living (keeping fit, skin care, bowel and bladder care, sexuality, home access, maintaining a wheelchair, wheeling technique, insurance)

  • Psychological and social issues (grieving loss, self-image, adjustment to life change, friends, family, asking for and being helped, cultural attitudes, history of disability, and activism)

 

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Living with Ataxia - An information and resource guide by Martha A. Nance, MD for the National Ataxia Foundation

This illustrated book provides a compassionate, easy to understand explanation of ataxia with ideas on how to live well with ataxia. It is an excellent tool for building awareness for those who do not know what ataxia is or how it affects a person who has ataxia.

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Lysosomal Disease - Selected material from the Oxford Textbook of Medicine, 5th Edition - Edited by David Warrell, John Firth and Timothy M.Cox

Yet to be reviewed

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Muscular Dystrophy and Other Neuromuscular Diseases - Psychosocial Issues

Edited by Leon I. Charash et al

Here is a thoughtful new book for professionals who assist persons afflicted with neuromuscular disorders to help them and their families adapt to lifestyle changes accompanying the onset of these disorders. Health care professionals provide strategies to maintain the psychosocial well-being of children and adults with neuromuscular disorders which, in addition to physical damage, also assault the sense of self and challenge the individual's ability to move and communicate. Chapters describe the psychosocial aspects of a variety of neuromuscular diseases such as Duchenne and myotonic muscular dystrophy, multiple sclerosis, amyotrophic lateral sclerosis, Friedeich's ataxia, and Charcot-Marie-Tooth disease. The distinctive characteristics of each disease are examined with special attention given to the natural history, treatment, management, and psychosocial issues of the specific disorder.

Beyond the clinical and research importance of Muscular Dystrophy and Other Neuromuscular Diseases, it also addresses the anxiety, doubts, and questions felt by patients with chronic progressive disabilities and their families. This helpful guide is unique in the way it features the interaction of professionals in the social services, psychology, religion, and various medical specialties in the care and treatment of these patients. Professionals in all of these disciplines, as well as the patients and families afflicted by these disorders, will benefit from this valuable resource.

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My Brother, Matthew by Mary Thompson

A book especially for siblings. My Brother, Matthew is narrated by a young boy who describes the ups and downs of day-to-day life as he and his family adjust to his new brother, Matthew, who is born with a disability. David, the older siblings, wryly shares his experiences -- the worry, impatience, feeling left out, being talked down to my grownups -- and the positive ways in which he has built a unique relationship with his brother. Fully illustrated and sensitively written, this is a story that can help other siblings share their feelings and reassure them that their role in the family is very important.

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Numb Toes and Aching Soles - Coping with Peripheral Neuropathy. The silent affliction which causes pain or weakening muscles for millions. Possible treatments with over 200 patient comments

John A.Senneff

This offers a wealth of detail, and is a crucial reference for everyone who suffers from this painful condition. Senneff illustrates the various treatments without judging them. This arms patients with the information they need so they and their doctor-and not the doctor alone-can decide on what treatments to try. This is especially important for peripheral neuropathy because what works for a specific patient remains very much a trial-and-error proposition - Google Books

 

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Pompe disease in children and adults: natural course, disease severity and impact on daily life - Results from a international patient survey by Maria Hagemans

Yet to be reviewed

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The sexual politics of disability - Untold desires by Tom Shakespeare, ‎Kath Gillespie-Sells and ‎Dominic Davies

This book, based on first-hand accounts, takes a close look at questions of identity, relationships, sex, love, parenting and abuse and demolishes the taboo around disability and sex. It shows the barriers to disabled people's sexual rights and sexual expression, and also the ways in which these obstacles are being challenged. Variously moving, angry, funny and proud, The Sexual Politics of Disability is about disabled people sharing their stories and claiming their place as sexual beings.

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The Sky's the Limit - Tony Christiansen talks to Angie Belcher

Having no legs didn't stop Tony Christiansen from climbing trees, racing go-karts or being a surf club life saver. His answer? "It's not what happens to you that counts, it's what you do about it." This book is aimed at children of about primary school age.