Best-practice Care for SMA Academic Article

Background: The International Standard of Care Committee (SCC) for SMA was formed in 2005 with the goal of establishing practice guidelines for the clinical care of SMA patients. The 12 core committee members worked with over 60 SMA experts in the field.

Consensus was achieved in several topics regarding common medical problems in SMA, the diagnostic strategies, recommendations for assessment and monitoring, and for therapeutic interventions in each care area. A consensus statement was drafted to address the 5 care areas according to three functional levels of the patients: non-sitter, sitter, and walker. Several medical practices were also identified where there is no consensus, and these warrant further investigation. The full report, entitled "Consensus Statement for Standard of Care in Spinal Muscular Atrophy", was published in the Journal of Child Neurology in August 2007. A copy may be obtained from the journal's website as a free download by clicking the link provided.

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