Charcot-Marie-Tooth Disease

Charcot-Marie-Tooth (CMT) a practical guide

CMT UK has created a resource which is very comprehensive with regards to what it is and how to manage it. Please click  to be taken to CMT: a practical guide.

Medications to avoid

The Charcot-Marie Tooth Association provides a list of medications that are potentially toxic to people with Charcot-Marie-Tooth disease. Please click here for the full list.

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CMTPedS calculator now online!

The Centre of Research Excellence in Neuromuscular Disorders has just (March 2015) finalised a new calculation tool to measure the level of disability in children with Charcot-Marie-Tooth disease (CMT).

The CMTPedS Calculator is a user-friendly online tool developed to support the CMT Pediatric Scale, which collects validated measures of strength, dexterity, sensation, gait, balance, power and endurance to establish severity of disease and monitor changes over time in children with CMT. It can also be used to evaluate outcomes in studies of existing or new treatments for CMT.

Clinicians and researchers can enter patient data live into the CMTPedS Calculator to rapidly determine disease severity and generate a clinical report for patient correspondence and records. To start using the calculator, go to www.cmtpeds.org.

The CMTPedS site features links to the CMTPedS validation paper in Annals of Neurology, as well as training resources and videos of how to use the CMT Pediatric Scale and calculator. 

Would you like someone from MDA to speak to you and your colleagues or students or at your conferences?

Email  info@mda.org.nz