Charcot-Marie-Tooth (CMT) a practical guide
CMT UK has created a resource which is very comprehensive with
regards to what it is and how to manage it. Please click to
be taken to CMT: a
Medications to avoid
The Charcot-Marie Tooth
Association provides a list of medications that are potentially
toxic to people with Charcot-Marie-Tooth disease. Please click here for the
CMTPedS calculator now online!
The Centre of Research Excellence in Neuromuscular
Disorders has just (March 2015) finalised a new calculation
tool to measure the level of disability in children with
Charcot-Marie-Tooth disease (CMT).
The CMTPedS Calculator is a user-friendly online tool developed
to support the CMT Pediatric Scale, which collects validated
measures of strength, dexterity, sensation, gait, balance, power
and endurance to establish severity of disease and monitor changes
over time in children with CMT. It can also be used to evaluate
outcomes in studies of existing or new treatments for CMT.
Clinicians and researchers can enter patient data live into the
CMTPedS Calculator to rapidly determine disease severity and
generate a clinical report for patient correspondence and records.
To start using the calculator, go to www.cmtpeds.org.
The CMTPedS site features links to the CMTPedS validation paper in
Annals of Neurology, as well as training resources and
videos of how to use the CMT Pediatric Scale and
Would you like someone from MDA to speak to you and your
colleagues or students or at your conferences?