Charcot-Marie-Tooth Disease (CMT)
What is Charcot Marie Tooth (CMT)?
Charcot-Marie-Tooth, or CMT, is the
most commonly inherited peripheral neuropathy and is found
worldwide among all races and ethnic groups. Discovered in 1886 by
three physicians, Jean-Martin Charcot, Pierre Marie, and Howard
Henry Tooth, CMT affects an estimated 2.6 million people.
For more information about Charcot Marie Tooth Disease click
Medications to avoid
The Charcot-Marie Tooth
Association provides a list of medications that are potentially
toxic to people with Charcot-Marie-Tooth disease. Please click here for the
The MDA members with Charcot-Marie-Tooth (CMT) Pain
The MDA members who live with CMT have chosen to share their
experiences managing pain with others. When collating
feedback it was identified that people with CMT have very variable
presentations with regards to pain. Some people report no pain at
all, while others struggle to keep on top of their pain levels with
the medications that are available. Please click
here to be taken to the full document.
Foot care for people with CMT
A Practice Brief focusing on foot care for people with
Charcot-Marie-Tooth disease (CMT) has been developed by Professor
Josh Burns and the Centre of Research Excellence in Neuromuscular
Disorders. The resource is especially designed for frontline allied
health clinicians such as Podiatrists, Physiotherapists, Orthotists
and Pedorthists and is available from the MDA's website.
What does the Practice Brief provide?
- A description of CMT signs and symptoms.
- Tips for facilitating diagnosis for an individual showing
signs and symptoms of CMT.
- Strategies for regular care of the feet and ankles of
someone with CMT, including stretching interventions
and recommendations for foot and ankle orthoses.
- Key sources of information and support for people with
CMT and their treating health professionals.
Neuropathy Foundation (USA)
The Foundation To Support Those Living With
Click here to be taken
to the vaccination page.
here to be taken to the respiratory care page.
Check out the support groups page to see what is
available in your area.
Here is where we answer some of our members questions. If you
have any questions please email them to firstname.lastname@example.org and we will
endeavour to answer them.
Work Related Questions
What can I do if typing becomes difficult?
There are options available such as using voice recognition
software or a touch screen tablet/ipad using a
program called 'SWYPE' All you have to do is run your
finger up and down the keys and stop on the one you want. You
don't have to lift your finger off the glass.
Another suggestion is to have a workplace assessment with an
occupational therapist. Who can then make recomendations on
specific equipment that might help. This can usually be arranged
via your employeer or can be paid for privately.
A company that sells aids is calles Zabonne www.zabonne.co.nz and may
have some useful items.
THIS PAGE WAS REVIEWED 19 FEB 2016