Discretionary Funding 

Purpose

The purpose of this fund is to provide discretionary grants for individuals with a neuromuscular condition to access opportunities and specialised resources that enable them to achieve freedom.

This fund was made possible by a bequest from Mr Bruce Cochrane.  The fund is held and administered by the National Office of MDANZ and began receiving applications in March 2016.

Who can apply?

Individuals diagnosed with a neuromuscular condition (*covered by MDANZ) and who are registered as General or Life members of the MDA are eligible to apply.   

A parent or guardian can apply on behalf of Rangatahi and Tamariki members.

How much can I apply for?

Grant applications will be considered on a case by case basis, subject to available funds.  Grants will not exceed $1,500.00 per year, per individual member.  Partial contributions are common, as we have limited funding available.  We ask that our members explore other funding options before applying to our fund.

What can I apply for?

We want our members to experience greater freedom in life.  On the application form, you will need to tell us how the resource or opportunity will enhance your life and help you achieve more freedom. 

Examples of grant applications that might be considered under this fund are; 

  • Specialised sports equipment
  • Contribution towards the costs of a Mobility Dog being placed with you
  • Travel to attend an international forum for a rare condition
  • Participation in a sporting event
  • Career development (e.g. university fees, course fees)

What can’t I apply for?

We will not consider applications for items or activities which currently meet government funding criteria.   For example, if you are eligible to receive equipment from the Ministry of Health, MDANZ will not fund it.   Where relevant, we may request a letter to show that government funding has been declined.

Funding for therapies and treatments of an ongoing nature will not be considered at this stage due to the “one off” nature of the grant.   MDANZ will continue to advocate for better provision of therapies by health and education services. 

MDANZ will also not consider grants for an activity or resource that has not been proven as beneficial to people with neuromuscular conditions, that has a risk of causing harm, or that is inconsistent with best practice guidelines.   

When do I apply?

We have four funding rounds a year and the closing dates are: 

31st January, 30th April, 31st July and 31st October.  Closing dates may be extended at the discretion of the Chief Executive. 

How to apply

Click here to download an application form, or fill out the contact form at the bottom of this page and we will be happy to assist you.

More information

For more information please click here

To view our assessment panel guidelines please click here

 

Contact us

Please use the boxes below to contact us with a brief outline of your requirements:

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