Our Annual Campaign


Get ready for 2017, where we build on last year and celebrate Freedom for a whole month!

This year, we kick off on 6th September and will conclude with a nationwide street appeal on Friday 29th September.

We will be in the media, talking to others and among ourselves about what Freedom means.

Get involved!

Take a donation box

We have mints and silicon wrist bands to sell. See if your workplace or a local cafe would be happy to
have a box on their reception desk or counter.

Download an order form here

Hold a school mufti day

Your school might like to hold a mufti day, wheels day or have a coin trail.  Freedom is a universal word that everyone can relate to and we want our young people to have fun with our logo and concept. 

Download a Freedom colouring page by clicking here.

To connect with us and find out about how we can support your school activity, download a form by clicking here. 

Tell us what Freedom means to you

Using our poster, write, sketch or draw what freedom means to you, take a photo of yourself holding this up and either upload it to our Instagram account or send it to us.   To download the poster, click here.

Participate in an event

 6th Sept.   Freedom Campaign Launch, Stardome Observatory, Auckland
 7th Sept.   Global DMD Awareness Day, online balloon promotion via Facebook
 9th Sept.   Neuromuscular Child Health Educational Seminar, Auckland
15th Sept.  FSHD Scientific Seminar, Auckland
16th Sept.  Cocktail Event & Charity Auction, Auckland
23rd Sept.  Educational Seminar, Christchurch & Funny Money Casino Evening, Hastings
24th Sept.  Movie Night, the Light House Cinema, Petone
29th Sept.  Pop up Cafe, Dunedin & Nationwide Freedom Street Appeal
30th Sept.  LGMD Awareness Day – online promotion

September is also CMT Awareness Month.